Posts Tagged ‘Cystic Fibrosis Foundation’

Basement Songs: Jay-Z featuring Alicia Keys, “Empire State of Mind”

The email came on a Thursday morning, as I sat at my desk, waking up. My friend, Nancy, was running the Santa Monica half marathon in three days and she wanted to know if I was interested in being her running buddy, to jog alongside her to make the 13.1 miles go by a little easier. More than a year had passed since I ran my last half marathon and the longest distance I’d covered since then was a mere 5 miles. Yet I had been a dedicated runner for over nine months, so the idea wasn’t implausible. Nancy would be run/walking at a ratio of one minute running to one minute walking. I figured I would be fine for at least nine miles; and then gut it out for the remainder of the race.

Nancy and I are more than just two people who like to punish our bodies; we both use these long races to serve as fundraisers for the Cystic Fibrosis Foundation. Nancy has a son named Jacob, too, and he also lives with cystic fibrosis. This year Nancy raised $17,000! For all of the hard work that went into her training and fundraising (especially in today’s economic climate), I would certainly be her running buddy.

There was little I could do physically to get ready for the run; whatever endurance I’d built up in the past year would have to suffice. However, the physical aspect has never been the challenge. Instead, my downfall has always been the mental burden I place on myself. With one stray thought I can experience an enormous letdown that can ruin the run. However, the spontaneous decision to just be a companion was freeing; I felt younger and impulsive, like my carefree days in high school and college when I didn’t care so much about my actions because I felt invincible. Feeding the fuel of my attitude was my discovery of “Empire State of Mind,” Jay-Z’s rousing collaboration with Alicia Keys. It’s the type of song that can make even the most ardent rap hater reconsider.

Is it the tingling piano? The bravado mixed with sincerity in Jay Z’s rapping? Perhaps it’s when Alicia goes into harmony in the final chorus, right after the bridge. It’s all of those things, combined with an infectious drum and bass line. “Empire State of Mind” is the ideal song to pump you up for an early morning jog, or a half marathon.

Sunday morning came and I bolted out of bed around 5:00 AM. I barely slept the night before experiencing the type of pre-race jitters I hadn’t had since my first marathon in 2003. I found this strange because it wasn’t my race; it was not my fundraiser. I didn’t have anyone to answer to this time around. I was just a friend pitching in at the last minute. So why was I nervous? As I rolled out of my neighborhood and merged on to interstate 5 heading south toward Santa Monica, I must have listened to Jay-Z and Alicia Keys four or five times in a row before finally moving on to a new song. The commute was quick and easy as there was no traffic, save for the line to get into the parking lot. Once I found a space and got myself settled, I ventured out into the mass of people gathered on Venice Beach, searching for Nancy.

Nancy and I met back in 2006 when the two of us ran the Carlsbad half marathon. We were introduced by our running coach, Robert, the night before the race. That year my knees had been giving me so much grief that for my last month of training all I could do was walk and bicycle. During that Carlsbad race, my body nearly gave out and I considered quitting. Luckily I had Nancy as my running companion. She stuck with me even though she could have run ahead and finished with a better time. I’ve never forgotten that, which, I realized in that moment, standing with Nancy and Robert on the beach, was why I was in Santa Monica that morning. It was also why I was so anxious: I didn’t want to let Nancy down.

After a spirited rendition of the National Anthem, the Santa Monica half marathon began and the two of us took off and a nice, moderate pace. The weather was perfect: high 60’s, low humidity, the sun breaking through the clouds late in the morning. The scenery was nice, but I barely noticed it as I was so caught up in the conversation I was having with my old friend. We compared parenting notes, discussed how her oldest son was doing in college and how her Jacob was applying to schools (he’s in the 12th grade). We talked about the tough times my Jacob has when it comes to doing his breathers and how he’s starting to rebel. Nancy had some great advice about how to talk to both Jacob and Sophie, as well as advice about hospitals and what out options are. But it wasn’t all CF related. Nancy is also a writer, so she filled me in about the book she’s developing. Meanwhile, I gave her the lowdown on my own novel. And wouldn’t you know it, during the lulls in conversation, whether we were drinking water or munching on almonds, I had “Empire State of Mind” stuck in my head, that opening drum beat keeping me going, pushing me.

It’s comical, when you think about it, a fortysomething white guy shuffling through the streets of Los Angeles with a New York City song going round and round in his internal stereo. At one point, Nancy wished aloud that she could hear some music, just to give our run a little nudge (this was around mile 10). I made a very weak and pathetic attempt to sing like Alicia Keys. This effort lasted about two words before I decided, “Yeah, that’s not going to happen.”

We finished the race in under three hours. I was so proud of Nancy; it takes a lot of dedication and sacrifice to train for a half marathon. It’s even more difficult when you consider the obligation one feels having raised a large sum of money. Sure, you could accept the donations and simply say you ran. But it isn’t the same.

After working our way through the finish line crowd, Nancy and I made our way back to the parking lot. We said our goodbyes with hugs and laughs, unsure when we’d see each other again. I dragged my weary body into my car, where I downed a half bottle of Gatorade and cranked up my radio. I’ll give you one guess what I listened to first.

Put your lighter in the air and say “yeah!”

Basement Songs: Death Cab for Cutie, “Grapevine Fires”

This past week, whenever I stepped out to get in my car, a thin layer of ash dusted the roof of my blue Jetta. CDDeathCabThis constant reminder of the dangerous fires burning nearby rouses images of last November when that season’s wildfires prevented the Pasadena Half Marathon from being held. I had trained all year for the race to raise money for the Cystic Fibrosis Foundation. I was prepared to fulfill my obligation to the donors who supported me, but there would be no official race. Instead, my half marathon would take place on a 13.1 mile course I’d mapped throughout our city. Despite the health risks of airborn particles, rising temperatures and a pair of thrashed running shoes that should have been replaced a couple months earlier, I ran for my son and my family.

Two particular moments come back to me from that Sunday morning in November of 2008.

Early in the run, around the five mile mark, I began an ascent up a mile long hill that leads past a new subdivision. I came over the horizon to the sight of the sun hanging up in the air like an orange, trying to burn through the smoking plumes coming from the south. A deep blue sky filled in the background behind the sun and the haze, creating an impression of glory and dread. As I gradually worked my way to the top on tired legs, Death Cab for Cutie’s “Grapevine Fires,” from their remarkable CD, Narrow Stairs, accompanied me on my journey. This song carries the weight of Death Cab for Cutie’s typical melancholy, yet I found strange comfort in the shuffling drum beat and the haunting lyrics, words that I read as strangely devotional between the song’s characters. Of course I thought of my family and how committed we are to each other. As the day progressed, all three of them, Julie, Sophie and Jacob, would meet me at various locations to provided me with a refill of water, snacks, and the cheers I needed to complete my solo run. (more…)

Basement Songs: Bruce Springsteen, “Working on a Dream”

workingsingleEach spring when Great Strides rolls around and we begin fundraising for the Cystic Fibrosis Foundation, Julie and I do our best to write a letter that grabs people’s attentions and hopefully inspires them to make a donation. This is actually a pretty tough task. We want to convey how devastating cystic fibrosis is, yet still rejoice in the fact that our son, Jacob, is doing well. We want to share that although Jacob’s health continues to be good, living with the disease has really taken a toll on him emotionally this year. And while we are incredibly fortunate that Jacob is doing well, lives are lost everyday. Despite the medical breakthroughs being made each day, children and adults fighting for their lives are losing their battle with cystic fibrosis.

Last week, as we toured our daughter Sophie’s classroom for open house, hanging on the bulletin board was a paper she’d written in class about her greatest wishes. Included among her noble thoughts was this one:

“I wish my brother didn’t have cystic fibrosis. He has to do breathing treatments two times a day and take many pills. Sometimes he gets so sick he has to go in the hospital.”

These succinct, simple words by our beautiful 10-year-old daughter brought tears to our eyes, summing up what our entire family, both blood and extended, are feeling.

Back in December, I purchased the title track/first single to Bruce Springsteen’s latest. As the song has received regular airplay in our house since then, the words have taken on deeper meaning.

I’m working on a dream
Though trouble can feel like it’s here to stay
I’m working on a dream
Our love will chase the trouble away

I’m working on a dream
Though it can feel so far away
I’m working on a dream
And our love will make it real someday
(more…)