
In our house, the Donnas’ “New Kid in School” is known as the song with the ‘A’ word in it. It’s a word Sophie and Jacob have heard hundred of times, as their father spits out profanity like Darren McGavin in A Christmas Story. We hear “New Kid in School” quite a bit in the house these days; it’s become one of Jacob’s favorite tracks to play on Rock Band. His affinity for this song, as well as classics by the Clash, Ramones and Replacements, confirms what I’ve suspected for a couple of years now: My boy likes his music fast and loud.
Since the days when he’d jump around carrying a ukulele like a guitar during Springsteen’s “The Rising,” Jake has always been a boisterous little kid. His voice booms throughout the house whenever he’s happy (or angry, or sad). One of the reasons I believe he’s so loud is because of his breathing treatments. Twice a day the buzzing of his nebulizer machine and the vibrating noise of his Vest take over the house. It’s hard for me to hear when I’m standing at the other end of the house; imagine what it must be like sitting right next to the machines. Add to that the constant hissing of the misting medicine he has to breathe in and the whole experience must feel quite claustrophobic. When you take this into consideration, is it any wonder that Jake’s voice thunders from room to room? (more…)

an appointment with his CF doctor they shove a swab down his throat and test him for harmful bacteria. One bacteria they look for is
Each spring when
Through the eyes of my son, I’ve been reliving a part of my youth in the form of colorful costumed super heroes from cartoons and the pages of comic books. Because Jacob’s sister, Sophie, and his mom have no enthusiasm whatsoever for this stuff, he and I get to bond over the muscle bound humans out to save the world. With equal parts fascination and wonder, the two of us leaf through my musty old comics from the ‘80s and the glossy new ones we buy once a month.
Five years ago I began a mission running marathons and half marathons to raise money and awareness for cystic fibrosis.
I am running for my son.
